HOW WE BEGAN

Lucie Leonard was 34 when she lost her seven year battle with a grade 3 astrocytoma in 2012. Her mother Robyn Leonard quickly became a passionate consumer advocate for brain cancer research and was inspired to create Australia’s first brain cancer biobanking consortium by the work of consumer advocates in the USA. Her vision was shared by leading brain cancer clinicians, researchers and biobankers across the country, who joined her pursuit to expedite researchers’ access to tissue samples and data by networking and harmonising the disparate brain cancer biobanking operations Australia-wide.


Our mission

BCBA is committed to supporting research performed by clinicians and scientists working in both the paediatric and adult brain cancer fields. The consortium has been established under the umbrella of the Cooperative Trials Group for Neuro-Oncology (COGNO) with the goal of accelerating brain cancer research and the translation of that research into improved outcomes in patient care.

Our aims are to:

  • Build capacity in Australia for best-practice brain cancer biobanking procedures and protocols for the acquisition, handling, storage and distribution of biospecimens and the collection of associated data.

  • Facilitate increased biospecimen accrual rates Australia-wide.

  • Leverage and harmonise existing resources in order to increase the quantity and quality of available specimens.

  • Implement and maintain systems to provide biospecimens and associated clinical data to researchers in a fair, ethical and sustainable manner.

  • Facilitate the use of biospecimens in research projects with clear scientific and health benefit.

  • Enhance opportunities for national and international brain cancer research collaborations.



Governance


BCBA is a not-for-profit group established in 2015 and operating under the umbrella of COGNO at the NHMRC Clinical Trials Centre, University of Sydney. BCBA governance structure is composed of the consortium group, steering committee and operations group.




Consortium group

Click here to show/hide

A/Prof Michael Back

Radiation Oncologist

Director, Radiation Oncology, Northern Sydney Cancer Centre, Royal North Shore Hospital, Sydney

Prof Michael Besser

Neurosurgeon

Retired Head, Department of Neurosurgery, Royal Prince Alfred Hospital, Sydney

Prof Andrew Boyd

Senior Principal Research Fellow

Head, Brain Cancer Research Unit, QIMR Berghofer, Royal Brisbane Hospital

A/Prof Michael Buckland

Neuropathologist

Head, Department of Neuropathology, Royal Prince Alfred Hospital, Sydney

Prof Jennifer Byrne

Research Scientist

Head, Children's Cancer Research Unit, The Children's Hospital at Westmead, Sydney

Dr Lawrence Cher

Neurologist and Neuro-Oncologist

Austin Health, Melbourne

Dr Raymond Cook

Neurosurgeon

Head, Department of Neurosurgery, Royal North Shore Hospital, Sydney

Dr Bryan Day

Research Scientist

Brain Cancer Research Unit, QMIR Berghofer, Royal Brisbane Hospital

Dr Jerry Day

Neurosurgeon

Head, Department of Neurosurgery, Wollongong Hospital

Dr Andrew Davidson

Neurosurgeon

Macquarie University Hospital, Sydney

Ms Lisa Devereux

Project Manager

Peter MacCallum Cancer Centre, Melbourne; Vice President, Australasian Biospecimen Network Association

Dr Mark Dexter

Neurosurgeon

Director of Neurosurgery, South West Area Health Service, Sydney

A/Prof Kate Drummond

Neurosurgeon

Royal Melbourne Hospital, Melbourne

Dr Lisa Eckstein

Lecturer

Law and Medicine, Faculty of Law, University of Tasmania

Ms Robyn Flook

Biobank Manager

SA Brain Bank, Flinders University, Adelaide

Dr Hui Gan

Medical Oncologist

Austin Health, Melbourne; Snr Research Fellow, Ludwig Institute for Cancer Research

Dr Craig Gedye

Medical Oncologist

Calvary Mater Hospital Newcastle; Research Fellow, Hunter Cancer Research Alliance

Dr Nick Gottardo

Paediatric Oncologist

Head Brain Tumour Program,Telethon Kids Institute, Princess Margaret Hospital, Perth

Prof Manuel Graeber

Neuropathologist

Barnet-Cropper Chair, Brain Tumour Research, Brain & Mind Research Institute, University of Sydney

Dr Lindy Jeffree

Neurosurgeon

Royal Brisbane and Women's Hospital, Brisbane

Prof Terrance Johns

Research Scientist

Head, Oncogenic Signalling Lab, Monash Institute of Medical Research, Melbourne

A/Prof Mustafa Khasraw

Medical Oncologist

Royal North Shore Hospital; Oncology Senior Research Fellow, NHMRC Clinical Trials Centre, Sydney Medical School, USyd

Dr Ganessan Kichenadasse

Medical Oncologist

Flinders Centre for Innovation in Cancer, Flinders University, Adelaide

Dr Eng-Siew Koh

Radiation Oncologist

Liverpool Cancer Therapy Centre, Liverpool Hospital, Sydney

Dr Wendy Lipworth

Senior Research Fellow

Centre for Values, Ethics and the Law in Medicine, USyd

Ms Robyn Leonard

BCBA Founder

COGNO Scientific Advisory Committee; Deputy Chair, Cancer Trials Consumer Network

Dr Lousie Ludlow

Biobank Coordinator

Children’s Cancer Centre Tissue Bank, MCRI, Royal Childrens Hospital, Melbourne

A/Prof Kerrie McDonald

Research Scientist

Head, Cure For Life Foundation Neuro-oncology Lab, Lowy Cancer Research Centre, UNSW

Dr Andrew Moore

Paediatric Oncologist

Lady Cilento Children’s Hospital Brisbane; Director, Queensland Children’s Tumour Bank, University of Queensland

Dr Lenka Munoz

Research Scientist

Department of Pathology, School of Medical Sciences, University of Sydney

Dr Najmun Nahar

Radiation Oncologist

Crown Princess Mary Cancer Centre, Westmead Hospital, Sydney

Prof Anna Nowak

Medical Oncologist

Sir Charles Gairdner Hospital Perth; School of Medicine and Pharmacology, UWA

Dr Sarah Olson

Neurosurgeon

Princess Alexandra Hospital, Brisbane

Dr Rebecca Ormsby

Biobank Coordinator

SA Neurological Tumour Bank, Flinders University, SA

Dr Jonathon Parkinson

Neurosurgeon

Royal North Shore Hospital, Sydney

Ms Audrey Partanen

Biobank Manager

Victorian Cancer Biobank, Melbourne

Ms Emma Raymond

Biobank Manager

Wesley Research Institute Tissue Bank, Wesley Hospital, Brisbane

Prof Roger Reddel

Director

Children's Medical Research Institute, Westmead; Sir Lorimer Dods Professor, Sydney Medical School, USyd

A/Prof Peter Robbins

Pathologist

PathWest, QEII Medical Centre Perth

Dr Jodi Saunus

Research Scientist

Breast Pathology, University of Queensland Centre for Clinical Research, Brisbane

Dr Brindha Shivalingam

Neurosurgeon

Royal Prince Alfred Hospital, Sydney

Prof John Simes

Director

NHMRC Clinical Trials Centre & Sydney Catalyst Translational Research Centre, University of Sydney

Dr Brett Stringer

Research Scientist

Brain Cancer Research Unit, QMIR Berghofer, Royal Brisbane Hospital, Brisbane

Ms Heather Thorne

National Manager

kConFab, Peter MacCallum Cancer Centre, Melbourne

A/Prof Claire Vajdic

Epidemiologist

Head, Cancer Epidemiology Research Unit, Centre for Big Data Research in Health, UNSW

Dr Winny Varikatt

Neuropathologist

Institute of Clinical Pathology & Medical Research, Westmead Hospital, Sydney

Prof David Walker

Medical Oncologist

Northern Cancer Institute, Royal North Shore Hospital, Sydney

Dr Helen Wheeler

Medical Oncologist

Royal North Shore Hospital, Sydney

Prof Deborah White

Director Cancer Research

SA Health & Medical Research Institute, Adelaide

Dr Sonia Yip

Oncology Translational Research Manager

NHMRC Clinical Trials Centre & Sydney Catalyst Translational Research Centre, University of Sydney

Dr David Ziegler

Paediatric Oncologist

Head, Clinical Trials Program, Kids Cancer Centre, Sydney Children's Hospital

Steering committee members

Dr Wendy Lipworth

Senior Research Fellow

Centre for Values, Ethics and the Law in Medicine, University of Sydney

Ms Robyn Leonard

BCBA Founder

Consumer Representative COGNO Scientific Advisory Committee; Deputy Chair, Cancer Trials Consumer Network

A/Professor Kerrie McDonald

Research Scientist

Head, Cure For Life Foundation Neuro-oncology Lab, Lowy Cancer Research Centre, UNSW

Dr Andrew Moore

Paediatric Oncologist

Lady Cilento Children’s Hospital Brisbane; Director, Queensland Children’s Tumour Bank, University of Qld

Dr Sarah Olson

Neurosurgeon

Princess Alexandra Hospital, Brisbane

Dr Jonathon Parkinson

Neurosurgeon

Royal North Shore Hospital, Sydney

Ms Emma Raymond

Biobank Manager

Wesley Research Institute Tissue Bank, Wesley Hospital, Brisbane

Dr Brindha Shivalingam

Neurosurgeon

Royal Prince Alfred Hospital, Sydney

Dr Brett Stringer

Research Scientist

Brain Cancer Research Unit, QMIR Berghofer, Royal Brisbane Hospital

Dr Helen Wheeler

Medical Oncologist

Northern Sydney Cancer Centre, Royal North Shore Hospital, Sydney



Our SUPPORTERS