HOW WE BEGAN

Lucie Leonard was 34 when she lost her seven year battle with a grade 3 astrocytoma in 2012. Her mother Robyn Leonard quickly became a passionate consumer advocate for brain cancer research and was inspired to create Australia’s first brain cancer biobanking consortium by the work of consumer advocates in the USA. Her vision was shared by leading brain cancer clinicians, researchers and biobankers across the country, who joined her pursuit to expedite researchers’ access to tissue samples and data by networking and harmonising the disparate brain cancer biobanking operations Australia-wide.


Our mission

BCBA is committed to supporting research performed by clinicians and scientists working in both the paediatric and adult brain cancer fields. The consortium has been established under the umbrella of the Cooperative Trials Group for Neuro-Oncology (COGNO) with the goal of accelerating brain cancer research and the translation of that research into improved outcomes in patient care.

Our aims are to:

  • Build capacity in Australia for best-practice brain cancer biobanking procedures and protocols for the acquisition, handling, storage and distribution of biospecimens and the collection of associated data.

  • Facilitate increased biospecimen accrual rates Australia-wide.

  • Leverage and harmonise existing resources in order to increase the quantity and quality of available specimens.

  • Implement and maintain systems to provide biospecimens and associated clinical data to researchers in a fair, ethical and sustainable manner.

  • Facilitate the use of biospecimens in research projects with clear scientific and health benefit.

  • Enhance opportunities for national and international brain cancer research collaborations. Visit our charity website to view current projects


OUR charity - brain cancer collective

In 2018 we launched the Brain Cancer Collective, a fundraising arm of BCBA, with the exclusive mission to raise funds to support new projects and initiatives that will accelerate brain cancer research in Australia. LEARN MORE




Governance


BCBA is a not-for-profit group established in 2015 and operating under the umbrella of COGNO at the NHMRC Clinical Trials Centre, University of Sydney. BCBA governance structure is composed of the consortium group, steering committee and operations group.




Consortium group

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A/Prof Michael Back

Radiation Oncologist

Director, Radiation Oncology, Northern Sydney Cancer Centre, Royal North Shore Hospital, Sydney

Prof Michael Besser

Neurosurgeon

Former Head, Department of Neurosurgery, Royal Prince Alfred Hospital, Sydney

Prof Andrew Boyd

Senior Principal Research Fellow

Head, Brain Cancer Research Unit, QIMR Berghofer, Royal Brisbane Hospital

Prof Michael Brown

Medical Oncologist

Director, Cancer Clinical Trials Unit, Royal Adelaide Hospital

A/Prof Michael Buckland

Neuropathologist

Head, Department of Neuropathology, Royal Prince Alfred Hospital, Sydney

Prof Jennifer Byrne

Research Scientist

Director, Biobanking Services, NSW Health Pathology; Professor of Molecular Oncology, University of Sydney

Dr Lawrence Cher

Neurologist and Neuro-Oncologist

Austin Health, Melbourne

Dr Raymond Cook

Neurosurgeon

Head, Department of Neurosurgery, Royal North Shore Hospital, Sydney

Prof Bryan Day

Research Scientist

Head, Sid Faithfull Brain Cancer Laboratory, QIMR Berghofer Medical Research Institute, Brisbane

Dr Jerry Day

Neurosurgeon

Head, Department of Neurosurgery, Wollongong Hospital

Dr Andrew Davidson

Neurosurgeon

Macquarie University Hospital, Sydney

Ms Lisa Devereux

Project Manager

Peter MacCallum Cancer Centre, Melbourne; Vice President, Australasian Biospecimen Network Association

Dr Mark Dexter

Neurosurgeon

Director of Neurosurgery, South West Area Health Service, Sydney

Dr Roy Donnelly

Barrister

Sir Anthony Mason Chambers, Sydney

Assoc Professor Kate Drummond

Neurosurgeon

Royal Melbourne Hospital, Melbourne

Professor Marion Eckert

Cancer Nursing / Clinical Researcher

Director, Rosemary Bryant AO Research Centre; Chair, Cancer Care Research Group, School of Nursing and Midwifery, University of South Australia

Dr Lisa Eckstein

Lecturer

Law and Medicine, Faculty of Law, University of Tasmania

Dr Raelene Endersby

Research Scientist

Joint Head, Brain Tumour Research, Telethon Kids Cancer Centre, Telethon Kids Institute, Perth

Dr Hui Gan

Medical Oncologist

Austin Health Melbourne; Snr Research Fellow, Ludwig Institute for Cancer Research

Ms Therese Garrick

Retired Manager

NSW Tissue Resource Centre and Brain Donor Programs, University of Sydney

Assoc Professor Craig Gedye

Medical Oncologist

Calvary Mater Hospital Newcastle; Clinical Research Director, NSW Statewide Biobank; Research Fellow, Hunter Cancer Research Alliance, HMRI Cancer Research Program (Mark Hughes Foundation Brain Cancer Biobank)

Dr Guillermo Gomez

Research Scientist

Head, Tissue Architecture and Organ Function Laboratory, Centre for Cancer Biology, SA Pathology and University of South Australia, Adelaide

Dr Nick Gottardo

Paediatric Oncologist

Joint Head, Brain Tumour Research, Division of Children's Leukaemia and Cancer Research, Telethon Kids Institute, Perth Children’s Hospital, Perth

Professor Manuel Graeber

Neuropathologist

Barnet-Cropper Chair of Brain Tumour Research, Brain & Mind Research Institute, University of Sydney

Professor Gilles Guillemin

Neuroscientist

Head, Neuroinflammation Group, MND Research Centre, Macquarie University, Sydney

Professor Clive Harper

Retired Head

Dept of Neuropathology Royal Prince Alfred Hospital and University of Sydney

Assoc Professor Lindy Jeffree

Neurosurgeon

Royal Brisbane and Women’s Hospital

Professor Terrance Johns

Research Scientist

Head, Telethon Kids Institute Cancer Centre, Telethon Kids Institute, Perth

Dr Kimberley Kaufman

Research Scientist

Head, Brain Cancer Research, Chris O’Brien Lifehouse; Manager, Sydney Brain Tumour Bank, Sydney Local Health District; Honorary Senior Research Fellow, University of Sydney

Assoc Professor Mustafa Khasraw

Medical Oncologist

Preston Robert Tisch Brain Tumor Centre; Deputy Director, Centre for Cancer Immunotherapy, Duke University, USA

Dr Ganessan Kichenadasse

Medical Oncologist

Flinders Centre for Innovation in Cancer, Flinders University, Adelaide

Dr Eng-Siew Koh

Radiation Oncologist

Liverpool Cancer Therapy Centre, Liverpool Hospital, Sydney

Dr Ben Kong

Medical Oncologist

Royal North Shore Hospital & Mater Hospital, Sydney; COGNO Clinical Research Fellow, NHMRC Clinical Trials Centre, University of Sydney

Dr Arian Lasocki

Neuroradiologist

Head of Radiology Research; Co-Head of MRI, Department of Imaging, Peter MacCallum Cancer Centre, Melbourne

Dr Wendy Lipworth

Senior Research Fellow

Centre for Values, Ethics and the Law in Medicine, USyd

Ms Robyn Leonard

Founder/Director BCBA

Consumer Representative, COGNO Scientific Advisory Committee; Deputy Chair, Cancer Trials Consumer Network

Dr Louise Ludlow

Biobank Coordinator

Children’s Cancer Centre Tissue Bank, MCRI, Royal Childrens Hospital, Melbourne

Dr Andrew Moore

Paediatric Oncologist

Lady Cilento Children’s Hospital Brisbane; Director, Queensland Children’s Tumour Bank, University of Queensland

Dr Lenka Munoz

Research Scientist

Dept of Pathology, School of Medical Sciences, University of Sydney

Dr Najmun Nahar

Radiation Oncologist

Crown Princess Mary Cancer Centre, Westmead Hospital, Sydney

Dr Wayne Ng

Biobank Manager

Victorian Cancer Biobank

Professor Anna Nowak

Medical Oncologist

Sir Charles Gairdner Hospital, Perth; Deputy Associate Dean for Research, Faculty of Medicine, UWA; Chair, Cooperative Trials Group for NeuroOncology (COGNO)

Professor Terence O’Brien

Neurologist

Program Director – Alfred Brain, Director of Neurology & Deputy Director of Research, Alfred Hospital, Melbourne; Head of Department of Neuroscience & Deputy Head of Central Clinical School, Monash University

Dr Sarah Olson

Neurosurgeon

Princess Alexandra Hospital, Brisbane

Dr Rebecca Ormsby

Biobank Coordinator

SA Neurological Tumour Bank, Flinders University, SA

Dr Jonathon Parkinson

Neurosurgeon

Royal North Shore Hospital, Sydney

Dr Santosh Poonnoose

Neurosurgeon

Flinders Medical Centre, Adelaide

Ms Emma Raymond

Research Business Manager

The Royal Brisbane and Women’s Hospital, Brisbane

Professor Roger Reddel

Director

Children's Medical Research Institute (CMRI); Sir Lorimer Dods Professor, Sydney Medical School, USyd; Head, CMRI Cancer Research Unit; Director, CellBank Australia

Assoc Professor Peter Robbins

Pathologist

PathWest, QEII Medical Centre Perth; School of Pathology and Laboratory, UWA

Professor Mark Rosenthal

Medical Oncologist

Peter MacCallum Cancer Centre, Melbourne; Director, Parkville Cancer Clinical Trials Unit

Dr Jodi Saunus

Research Scientist

Breast Pathology, University of Queensland Centre for Clinical Research (UQCCR), Brisbane

Prof Andrew Scott

Clinician/Scientist

Director, Department of Molecular Imaging and Therapy, Austin Health; Head, Tumour Targeting Laboratory, Olivia Newton-John Cancer Research Institute, Melbourne

Dr Brindha Shivalingam

Neurosurgeon

Royal Prince Alfred Hospital, Sydney

Dr Hao-Wen Sim

Medical Oncologist

The Kinghorn Cancer Centre and Chris O'Brien Lifehouse, Sydney; Clinical Lead and Group Coordinator, COGNO

Professor John Simes

Director

NHMRC Clinical Trials Centre & Sydney Catalyst Translational Research Centre, USyd; Medical Oncologist, RPA Hospital; Professor, Clinical Epidemiology, University of Sydney

Ms Heather Thorne

National Manager

kConFab, Peter MacCallum Cancer Centre, Melbourne

Professor Claire Vajdic

Epidemiologist

Head of Cancer Epidemiology Research Unit, Centre for Big Data Research in Health, UNSW

Dr Winny Varikatt

Neuropathologist

Institute of Clinical Pathology & Medical Research, Westmead Hospital, Sydney

Professor David Walker

Faculty of Medicine

University of Qld; Neurosurgeon, Wesley Hospital, Brisbane

Dr Helen Wheeler

Medical Oncologist

Northern Cancer Institute, Royal North Shore Hospital, Sydney

Professor Deborah White

Research Scientist

Director Cancer Research, SA Health and Medical Research Institute, Adelaide

Dr Sonia Yip

Oncology Translational Research Manager

Senior Translational Research Fellow, NHMRC Clinical Trials Centre & Sydney Catalyst Translational Research Centre, USyd

Professor John Zalcberg

Medical Oncologist

Peter MacCallum Cancer Centre, Melbourne; Head of Cancer Research Program, School of Public Health and Preventive Medicine, Monash University, Melbourne

Dr David Ziegler

Paediatric Oncologist

Haematologist, Bone Marrow Transplant Physician Head, Clinical Trials Program, Kids Cancer Centre, Sydney Children’s Hospital, Randwick

Steering committee members

A/Prof Lindy Jeffree

Neurosurgeon

Royal Brisbane and Women’s Hospital

Dr Ganessan Kichenadasse

Medical Oncologist

Flinders Centre for Innovation in Cancer, Flinders University, Adelaide

Ms Robyn Leonard

Founder/Director BCBA

Consumer Representative, COGNO Management Committee and Australian Brain Cancer Mission Strategic Advisory Group

A/Prof Wendy Lipworth

Bioethicist, Health Social Scientist

Sydney Health Ethics, University of Sydney

Prof Terence O’Brien

Neurologist

Program Director, Alfred Brain, Director of Neurology & Deputy Director of Research, Alfred Hospital, Melbourne

Dr Jonathon Parkinson

Neurosurgeon

Royal North Shore Hospital, Sydney

Ms Emma Raymond

Research Business Manager

The Royal Brisbane and Women’s Hospital, Brisbane

Dr Brindha Shivalingam

Neurosurgeon

Neurosurgeon, Royal Prince Alfred Hospital, Sydney

Prof Claire Vajdic

Epidemiologist

Head, Cancer Epidemiology Research Unit, Centre for Big Data Research in Health, UNSW

Dr Winny Varikatt

Neuropathologist

Institute of Clinical Pathology & Medical Research, Westmead Hospital, Sydney



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