This year BCBA is the grateful beneficiary of two grants from the Robert Connor Dawes Foundation. The first, a valuable $25,000 to support BCBA’s Project Coordinator position. The second, a $4,500 travel grant to support the attendance of BCBA Founder, Robyn Leonard, at the upcoming International Society for Biological and Environmental Repositories (ISBER) Conference in Toronto. Robyn has been invited to take part in the Symposium: ‘To Tell or Not to Tell’- The Practical Aspects of Returning Research Results and Incidental Findings to Biobank Participants. For more information on the ISBER Conference see Events section below.
For more information on the RCD Foundation visit:
We begin our monthly news item series on the BCBA biobanking network with the AGOG Epidemiology Study collection. Under the direction of A/Prof Claire Vajdic, Head of Cancer Epidemiology Research Unit, Centre for Big Data Research in Health, UNSW, the study is matching glioma brain tumour patients with an unaffected close family relative to better understand the genetic, lifestyle and environmental factors causing brain cancer. Currently this study has recruited an amazing patient/sibling cohort of 600 with blood and data already collected and stored from 400 of those participants. This remarkable resource, listed on the BCBA Researchers page, is open and available to researchers with approved projects.
For more information visit: http://agog.org.au/
Networked biobanking has been identified as one of 4 priorities to advance Complex Biology in the recently released Draft 2016 National Research Infrastructure Roadmap. The Roadmap sets out Australia’s national research infrastructure priority areas for the coming decade. BCBA provided a submission in response to the earlier National Research Infrastructure Capabilities Issues Paper (see link below) and was encouraged to see this significant outcome given the breadth of the Complex Biology portfolio.
The Draft 2016 Roadmap is available for download at: https://docs.education.gov.au/node/42216
Relevant pages 55–59. Summary of all priorities page 64.
For BCBA submission go to: https://submissions.education.gov.au/Forms/National-Research-Infrastructure-Capability-Issues-Paper-Submissions/Pages/index?t=o&srl=%2FForms%2FNational-Research-Infrastructure-Capability-Issues-Paper-Submissions&k=brain+cancer+biobanking+Australia
The Blue Ribbon Panel, established to provide a research blueprint for the Cancer Moonshot project, recently delivered a report that includes their 10 recommendations for expediting progress in cancer prevention, diagnosis, and treatment over the next 5 years.
For more information visit: https://www.cancer.gov/research/key-initiatives/moonshot-cancer-initiative/blue-ribbon-panel
BCBA has received a $74,500 grant from the Mark Hughes Foundation to further our efforts in providing researchers both nationally and internationally with the resources they need to advance brain cancer research. This grant will assist BCBA to continue the development of our recently established national brain cancer biospecimen register as we work towards creating the largest centralised registry of brain cancer tissue and data in the world.
The BCBA Consortium Group meeting held in Sydney in conjunction with the ASNO/COGNO Conference was once again a very well attended and productive event. Thank you to our guest speaker, international expert in brain cancer research, Prof Timothy Cloughesy, Director UCLA Neuro-Oncology Program. The data collection at UCLA will be our inspiration as BCBA works to provide clinical data collection guidelines for our network of brain cancer biobanks.
The NSW Biobank Certification Program aims to improve and harmonise biobanking standards through education and communication of best practices and Standard Operating Procedures. BCBA has registered for this NSW program as a virtual biobank hub and will proceed with certification when it becomes available in Spring 2016. Our member biobanks in NSW are encouraged to register separately.
Member biobanks outside NSW are encouraged to express interest in the program by emailing firstname.lastname@example.org and to register once the NSW pilot phase of the program is completed and the full program is rolled out nationally.
For more information and to register please visit the official website http://nsw.biobanking.org/
We would like to introduce our latest supporters Khushwant and Rob De Rose and Daniella and Anthony Ruberto -Directors of the Isabella and Marcus Brainstem Tumour Fund. BCBA is very grateful not only for their $25,000 donation, but their wish to provide ongoing support for the work of the BCBA consortium in both the paediatric and adult field of brain cancer research.
Thank you to the wonderful bakers and willing buyers at HP PPS Australia who raised almost $400 for BCBA at their recent morning tea event. Thank you also to Andrew Larke for putting our brain cancer research initiative on the HP PPS Australia radar and Thao Le.. not only for organising but baking as well!
BCBA continues to receive the support of Cancer Council NSW - the largest non-government funder of cancer research in Australia. In 2015 Cancer Council NSW was one of the initial seed funders of the BCBA initiative. Now this year they have provided a further $25,000 in funding. We want to thank Cancer Council NSW for their ongoing support and interest in our collaborative effort to provide researchers with the high quality tissue and data they need to advance brain cancer research.
BCBA Steering Committee member, Jennifer Byrne – Head Children’s Cancer Research Unit, Westmead – made the trip to Berlin in April to attend the annual meeting of the International Society of Biological and Environmental Repositories (ISBER) and has agreed to answer a few questions about what’s happening with biobanking on the international stage.
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Thank you to the wonderful group of young people who raised $5,770 for BCBA at their annual get together in memory of a friend who died from brain cancer. Thanks particularly to Liam O’Keeffe, owner of the Welcome Hotel in Sydney’s inner west; Katrina Bradley from Calais Estate Winery, Hunter Valley...
and Andrew Larke, auctioneer extraordinaire! A big thank you from all at BCBA for your marvellous support.
Thank you Michael Leonard, who in lieu of gifts asked family and friends attending his 40th birthday lunch to donate to BCBA in memory of his sister, Lucie. Thank you to everyone who responded so generously to Michael’s request, your donations have raised $2035 to support the efforts of BCBA to advance brain cancer research.
Liz and Scott Dawes are the Directors of the Robert Connor Dawes Foundation and BCBA is delighted with their recent commitment of $25,000 to support the work of our consortium. Liz and Scott created the Foundation in 2013 following the loss their son Connor to brain cancer. Our collaborative effort to advance research in both the paediatric and adult brain cancer field has attracted the interest of the Robert Connor Dawes Foundation and we look forward to continuing our relationship with them.
Sunday 22nd October 2017, 3.00 – 5.30pm is the date and time for the annual BCBA Consortium meeting. Once again the meeting will take place in conjunction with the COGNO ASM, this year being held in Melbourne on 23rd and 24th October.
May 9-12, 2017
Toronto, Canada is the location for the 2017 Annual Meeting of the International Society for Biological and Environmental Repositories (ISBER). This year the theme for this premier international biobanking event is Due North: Aligning Biobanking Practice with Evolving Evidence and Innovation. The plenary session will focus on how biobanking and its associated practices has changed, and continues to change the world.
For more information visit: http://meetings.isber.org/2017/#
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